This an excerpt from the New York Times Article “Caregivers Helped Us Be a Family. Everyone Should Have That Option” written by Rachael Scarborough King
“My 7-year-old son, Carl, realized that it was Tuesday and asked why Robert was not coming to our house that day. Robert had been a caregiver for my husband, Ady Barkan, for more than five years, helping with Ady’s day-to-day activities as he became progressively paralyzed because of the neurodegenerative disease amyotrophic lateral sclerosis, or A.L.S.
Tuesdays were Robert’s days, when he would help Ady work during the day and pick up Carl and his sister, Willow, in the afternoon, often going out for an activity in our red wheelchair-accessible van. Robert also helped Ady get into bed four nights a week, arriving around the kids’ bedtime and staying until 10 p.m.
Ady died from complications of A.L.S. in early November. Since then, the bustle of caregivers around our house has been strangely suspended for the first time in years.”